Rachel, 18 months, has a rare genetic condition resulting in multiple birth defects. She also has end-stage kidney disease. Three times a week, Rachel must travel to Boston Children’s for hemodialysis. Her mom works as an Emergency Medical Technician when she is able, and her dad normally works third-shift so he can be more available to take Rachel to her dialysis treatments. Since Rachel is at high risk of harm from COVID-19, her dad has taken time away from his job to keep her safe during the pandemic. This loss of income has led to a struggle to pay the family’s bills.
THE FAMILY SUPPORT FUND PROVIDED MUCH NEEDED FINANCIAL ASSISTANCE, PAYING ONE OF THE FAMILY’S UTILITY BILLS AND EASING THEIR FINANCIAL BURDEN.
Darrell, age 5, was diagnosed with sickle-cell disease at a very young age. Boston Children’s Hospital’s outpatient hematology program has followed him for most of his life. Darrell has had a complicated medical course throughout his life requiring frequent medical visits, frequent emergency-room visits and prolonged hospitalizations. His mom has had a difficult time maintaining employment due to Darrell’s medical needs and the needs of his two younger siblings. Due to the COVID-19 pandemic, Mom has had to leave her part-time job entirely.
THE FAMILY SUPPORT FUND AND HOSPITAL SOCIAL WORKERS HAVE BEEN ABLE TO KEEP FOOD ON THE FAMILY’S TABLE THROUGH GROCERY CARDS, AND TO PAY FOR THE FAMILY’S UTILITIES, AVOIDING SHUTOFF.
Seven-year old Billy has Lymphatic Malformation, rare, non-malignant masses that can cause multiple health issues. He has many Boston Children’s appointments each month, and his mom must take unpaid time off work to bring him here.
GAS CARDS HELPED MOM GET BILLY TO AND FROM THE HOSPITAL, AND TARGET GIFT CARDS PROVIDED FOOD AND CLOTHING.
Four-year-old Nina has a complex medical history, including Chronic Respiratory Failure. Nina’s breath – and life — depends on her connection to a mechanical ventilator. Her dad works multiple jobs to support the family while her mom cares for her. Recently Nina’s mom had arm surgery. Her dad needed to take time off work to care for both Nina and her mom. The struggling family is at risk of having their electricity shut off.
BY HELPING PAY THE FAMILY’S ELECTRICITY BILLS, WE KEPT NINA’S LIFESAVING EQUIPMENT RUNNING.
Adam is a 10-month-old with significant Gastrointestinal (GI) issues. Due to his condition, he’s had multiple replacements of a GI tube placed into his stomach and intestine. The family lives in western Massachusetts. Adam’s mom is unable to travel to Boston Children’s - she needs to stay home to care for Adam’s older brother, who has autism. Following Adam’s last inpatient stay at Boston Children’s, his dad lost his job due to taking time off to be with Adam.
WE WERE ABLE TO HELP THE FAMILY PAY THEIR ELECTRICITY BILLS, ALLEVIATING THEIR FINANCIAL BURDEN.
Yara is a 12-year-old with Treacher Collins Syndrome, a genetic disorder, and developmental delays. Her mom cares for Yara and her brother and works two jobs to pay the bills. Both children are patients at Primary Care at Boston Children’s Hospital’s Martha Eliot Health Center. Yara has grown a lot this year and needed new clothing, shoes and a warm jacket.
TARGET STORE GIFT CARDS ALLOWED YARA TO PICK OUT THE NEW CLOTHES SHE NEEDED.